Living with Ramsay-Hunt syndrome?

a little over 2 years ago was diagnosed with Bell's Palsy. After doing some research I have discovered that this is a symptom of Ramsay-Hunt. 28 months later I still have some paralysis and some of the symptoms of Ramsay-Hunt are evident (headaches etc.) In the last few months I have been prone to pains in the back of my head/neck that come and go. When less severe, it feels like a neck strain. When more severe my right eye flutters and tears and sometimes I am physically ill and in significant pain. I would like to hear from others out there that may have some first-hand experience with this. Unfortunately my Dr. has offered my little in the way of what I can expect in the future in terms of recovery, symptom management etc. Any advice (or hope) is sincerely appreciated.